Niki’s Cycling Video Diaries
Hi Everyone, my name is Niki, I’m 50 and these are my video diaries documenting what recovery from many years of chronic pain looks like for me. They were made in 2020.
Recovery looks different for everyone and is often very different to what you expect. It doesn’t mean freedom from all pain, but it does mean a freer and more fulfilling life.
It means learning to empower yourself and not expect a cure but that there are many and myriad ways of helping yourself, but there is also a lot of support out there, although for me it wasn’t within the medical system or by searching for a cure. Ironically when I let go of the hope that medicine would cure me, I found the treatment within myself, along with the Curable app.
I have Trigeminal Neuralgia, a severe nerve pain condition of the face, however I have been doing brilliantly with self-management techniques to control and reduce the pain and I’m steadily making a recovery into a more active and engaged life. This looks different for everyone but I am anxious to show that recovery and living a good life and being active and happy is very much a possibility for those with chronic pain and fatigue. I have also has been struggling with the effects of physiological dependence on prescription drugs, the results of which have been incredibly challenging, but this diary documents my progress with tapering off these as well… all with minimal medical assistance so far.
In the introduction video I introduce myself – I had already been getting a lot more physically fit with walking but I started a pilot study on an awesome outdoor rehabilitation course called Muddy Care (you may have seen some of these videos on their YouTube channel). After trying cycling in the Muddy Care Pilot study I found I really enjoyed it. So when COVID 19 hit and the cycling days were stopped, I dug out my sister’s old mountain bike and got out cycling, regardless of the lack of gears, brakes or a clue!
These diaries show the progression from small beginnings, getting fitter, how I manage and what I have learned. The videos show the ups and downs of this progress… it’s not all fun and games, I don’t always get it right, I can talk rubbish and I sniff WAY too much… but I try to be authentic to myself and my values and show these videos it in their raw, unedited and vulnerable glory. These were made in 2020 and Im slowly uploading new videos going forward into 2021 and event 2022.
I start these videos cycling 7 km and being very proud of that. Wait and watch and in September 2021 I actually joined the Flippin Pain Outreach Tour and ended up cycling 170 MILES in 4.5 days. I’d never have believed that was possible but it was. I’m currently (Spring 2022) not cycling much as I’m waiting urgent gallbladder surgery and I’m finding too much cycling challenging but I know I’ll be back on my bike and back in that happy place as soon as possible – and if I’ve gone backwards fitness wise, living with chronic pain teaches you how to cope with set backs and how to get back up that ladder after a slide down a snake faster and better than ever!
Chapter One Introduction.
Chapter Four – musing on the mind-body connnection
Chapter Five – taking time to listen to the birds
Chapter Six – searching for old haunts
Chapter Seven – exploration
Chapter Eight – Trigeminal Neuralgia triggers beaten!
Chapter Nine – exploring is fun!
Chapter Ten – musing in the heat!
Further videos on the playlist below and added regularly….
Flipping Pain Outreach Tour – 170 miles!!
In September 2022 I was proud to join the Flippin Pain Outreach Tour – cycling 170 miles in 4.5 days – and aiming to “flip” the publics understanding of pain at the same time! Here is a compilation video of my time on the Tour.